ribavirin

some truth about recovery from this treatment

Your Question for Lloyd

I am 3 months off Ribavirin and Interferon. The virus was undetectable 1 month into treatment and I stopped treatment 3 weeks early. I wish I had stopped earlier as I feel brain damaged and Nervous System Damaged. Cognitive Motor skills damaged...Eye sensitivity, emotonal and mental problems, depressed & fatigued. Will I recover? My boyfriend is still with me and I sometimes feel he thinks I use it as an excuse...and I question myself so I would like to hear some truth about recovery from this treatment. I took the treatment for almost 6 months and I am a 40 year old woman with no other health problems.

Thank you, Heather

Sincere thanks and a bit of my story

To: lloyd
Sent: 2/16/2012 7:53:20 P.M.
Subj: Sincere thanks and a bit of my story

Dear Mr. Wright:

Firstly, I am a 60 year old male who can truly relate to your life/lifestyle back "in the day", perverse humor (compliment), and your brave journey to save your own life when all the "experts" said you were nuts and just accept death. The difference being that I had you as my personal guide, along with a few doctors who told me about you and provided additional guidance.

Gilead Says Hepatitis C Patients Had Relapse in Trial, Shares Plunge

Shares of Gilead Sciences (GILD: 44.69, -2.31, -4.91%) fell 14% Friday morning after the drug maker said a majority of patients enrolled in one of its studies experienced a viral relapse within four weeks of completing the 12-week experimental hepatitis C treatment.

Six of the eight patients that previously had a “null” response but were taking GS-7977 plus the widely used antiviral ribavirin as part of Gilead’s Electron study had a relapse.

A Short Happy Life or a Long Miserable One

Joli sent a message using the contact form at http://lloydwright.org/messages/contact.

Hi Lloyd,
I no longer feel alone or crazy when I claim that interferon absolutely ruined my life.  I have been on several antidepressant combinations to no avail.  I took peg interferon with Ribovirin April 2002-2003.  I have  never been the same.  I have told family, friends, doctors, psychiatrists, counselors ect...that I have lost my personality, ability to think and even my spirit to this medicine. 

This treatment ruined my life!

Sent: Thursday, November 10, 2011 3:55 PM
To: LloydWright
Subject:
[Contact Lloyd] Severe disability resulting from Interferon + Ribavirin
treatment in 2003. I was never warned and I'm seeking legal advice
and/or recourse

_Smith sent a message using the contact form at  http://lloydwright.org/messages/contact.

Dear Sir,

Interferon is a vicious mean poison

Sent: Tuesday, October 18, 2011 8:47 PM
To: LloydWright
Subject: [Contact Lloyd] Interferon is a vicious mean poison

Jeff sent a message using the contact form at http://lloydwright.org/messages/contact.

I did interferon / ribavirin therapy from June 2008 - December 2008.  It was not successful in eradicating  the virus.  It did, however, prove a complete success in disfiguring me, robbing me of my athleticism and life force, and dulling my cognitive abilities.  I developed psoriasis and psoriatic arthritis.  I have embarrassing and isolating rashes where the sun doesn't shine. I constantly go to sun tan booths to keep things in check.  My muscles and joints hurt badly. My brain has been "altered."  That part has slowly gotten better, but it took 2 1/2 years and I am still not the same person I was before.  At least I am not quite so mentally unable to comprehend, prioritize, organize and do.

Advice: post hep c treatment

From: John
Sent: Sunday, August 28, 2011 3:21 PM
To: Lloyd
Subject: [Advice] post hep c treatment

Hi,   

I found your website 12 years to late.  anyway i went thru a year of  the 3 shots of interferon a week and 5 pills of ribavirin a day and feel worse then before i started the treatment. if i knew then what i know now, i never would have started that treatment.